Wednesday, April 9, 2014

So, this happened.

Tonight I was in our local Target store browsing their DVD deals.  Whilst shopping, security personnel comes up to me... And asks me what I am smoking.

I had my e cigarette in my hand, it was pretty obvious he was accusing me of smoking a vape pen filled with pot wax in the store.  As if I'm some kind of idiot.  I said it was tobacco.  He then proceeds to ask (with other customers around, who are now watching), why I was smoking.  I don't recall if I took a puff or not, I must have, or he was just a dick.

In the state of Iowa it isn't illegal to smoke e cigarettes anywhere.  There's no signs.  It isn't smoking a cigarette.  And while you shouldn't ingest the liquid itself (fucking duh), the vape that it expels is not proven in any circumstance to be harmful.

Needless to say, it was an embarrassing experience and I don't like being singled out simply because I have a fucking purple mohawk.

Anyway, I returned home to write the following letter to their corporate headquarters:

This evening I was shopping at your Blairsferry location for some movies when I was stopped by your security personnel.  I had my e cigarette in hand, and with other customers around, he asked "what I was smoking."  As if accusing me of smoking marijuana in your facility.  Immediately embarrassed and offended, I explained it was merely an e cigarette.  He then asked me "why I was smoking" (I guess I had taken a small puff while browsing DVDs), flabbergasted I had no response, knowing legally in the state of Iowa that e cigarettes are not illegal in businesses.  He told me smoking in the store was not permitted, and stared at me until I was able to awkwardly put my e cigarette into my pocket.  It was entirely embarrassing that this happened in front of other customers, especially given it felt I was being accused of carrying illegal substances.  Needless to say, I left your facility and took my business elsewhere for the evening, and I plan to do that more regularly.  I have no intention of shopping at your stores if this is the type of embarrassing treatment I get as a customer, and I will be sure to share my experience.  You should make sure your personnel are more respectful of shoppers and don't embarrass them publicly.
Hopefully this gets some sort of response.  Nobody deserves to be publicly berated in front of other customers when they are shopping, let alone accused of doing something illegal.  The whole situation could have been handled incredibly differently.

After stopping at Target, I went and bought a pack of cigarettes and a soda at the gas station.  Yeah I know, why buy cigarettes when you have an e cigarette.  Bad habit, plus for some reason I like smoking when I have 5 flyers to design.  The guy standing behind me at the register, "Do you smoke when you run?"

"No."

"Do you go jogging?"

"... No."

"Do you work out?"

"Not particularly." (As if with the way my AIP has been acting up like that is even fucking possible.)

"You look like you do."

"Okay."

"Exercise is good for you, you know, and smoking is bad for you."

"Oh, no way, I didn't know that.  That isn't common knowledge or anything.  Thanks for shedding some light on that for me."

Out the door I went.

You know studies show that obnoxious comments like that make people less likely to quit smoking?  Food for thought.  When stress and irritation arises in a smoker, they indeed, want to smoke.  Good plan would be to stop fucking doing that.

Thursday, April 3, 2014

You know what.

You're fucking welcome.  I'm glad me being a raging cunt got you to do something about the thing that bothered you the most.

Go you.  Applause.  Four for you, Glen Coco.  You go, Glen Coco.

Monday, March 24, 2014

Living with porphyria is something that has shaped and changed my life since I was 10.

Let me start at the beginning.

When I was 9 or 10, I got something that seemed like the flu.  The flu didn't get any better, and my parents took me to the doctor.  I was in so much physical pain some mornings I couldn't get out of bed.  The doctor tells my parents I have lupus.  They refused to accept this as an answering, and down to the University of Iowa hospital I go.  Frequently.  Over a period of six months.

I was poked and prodded.  On a good day, I could get up to walk around on my own.  I weighed 42 lbs when I turned 10 years old.  Not exactly a stunning vision of health.  I was so thin I had to sit on a pillow.  I could hardly keep food down.  All I wanted to do was sleep.  I remember thinking I was going to die.  Up until a year and a half ago, I had no idea that I had asked my father at one point if I was going to.

One day, I had a miraculous recovery.  I ate a cinnamon roll.  Followed by another cinnamon roll.  I remember my dad being so excited he had called my mom at work.  I hadn't been able to stay home alone at any point because we never knew if I would be able to get up on my own.  I can't remember now if I was in so much pain I didn't want to move, or if I physically couldn't.

As time progressed... I noticed plenty of joint pain, I would still get sick, and when I began menstruating I had the most horrendous cramps.  Enough that I was vomiting, laying in the fetal position, and I refused to get up.  I finally saw an OBGYN who was convinced I had endometriosis, and put me on continuous birth control to cease the issue.

Turns out, wasn't the issue.  When I was 22 I was diagnosed with adenocarcinoma of the cervix.  I ended up at the end of it having a laproscopic procedure done to ensure that nothing was affecting my uterus, and to see if I truly had endometriosis.  I had talked to a doctor when I was 19 and getting thoroughly ill again who believed I had AIP.  The initial tests had come back negative, but that didn't stop him from giving me a glucose IV and making sure I had pain killers to cease the issue.  Sure enough, it worked, and I was on my merry way again.  When my laproscopic procedure showed no signs of endometriosis, I figured out that my physician at some hospital in Dubuque was right.

I was told how to handle it the best I could at home.  There aren't any real treatments for porphyria.  Just ways to make you comfortable in living with it.  Constant chronic pain, fatigue, and the attacks are relentless.

It isn't the pain that is the real killer, though.

Now that I'm 29 years old and have had plenty of bouts at the hospital... I realize how deadly medical bills are.  With or without insurance.  I've begun to avoid going when I have attacks, even though that is the fastest way to curb my misery.  I simply cannot afford it, and cannot afford to go into anymore debt or have my credit score further destroyed by these horrible bills that I simply cannot afford to pay.  To people who say, "work more," or "get a second job"... This is a tremendous pain to work one.  It is wearing every day on my health and I do it just to get by.  Getting a second job is not an option.  Getting disability is difficult and something I've been avoiding because I do not want to sit at home all day not working.

I love work.  I love it even more knowing that there will be a day that I will no longer be able to.

Just remember when you judge someone that you may not see all of their suffering.  I look normal, I look healthy, but every day I have pain in my joints and muscles.  I have a constant abdominal cramping that I cannot shake.  This is something I have to live with and it isn't always easy, even when I try to make the best of it.

I've decided to blog more about living with this health condition, after reading several blogs of other people going through this.  I don't want people to think they are alone.  I don't want people to think they are the only ones suffering.  And maybe if we all communicate with one another... We can work through this.  And figure it out.

It's basically hell.

AIP is the devil on my back.

Wednesday, February 5, 2014

Word Vomit Wednesday: 2.5.2014

Happy WVW everyone.  As we all know, or you're about to find out, this is my favorite day of the week.  Why?  Because first, I made it up, second (the reason why I made it up), so I can say whatever I am thinking and just blame it on the fact it's a Wednesday.

It's a cop out for my lack of filter.  Let's be real.

Anyway.  We all know that I'm some sort of feminist, who hates sexism.  And not just because I think I should get the same pay for doing the same job and the same quality of work as a man, but because I think sayings like "be a man" are inherently terrible for the male gender as well.  Teaching them they can't have emotions, and all that other shit just because of their genitalia.  Come the fuck on.

The brain has all sorts of chemicals, and chemical responses to things, none of which I particularly understand but I know everyone is different and regardless of race, gender, religion, or what-have-you, people cry.  It's a bodily function.  Akin to taking a shit.  Kind of.

There's this post that's been circulating Facebook for awhile.  I decided to say fuck it, I shall start making WVW posts weekly if I have time/remember and I will continue to fight the good fight for equality for everyone because that is just what I do.  My comments will be italicized so you know what is me, and what is the ridiculous post.

Without further adieu, I bring you...


Sunday, February 2, 2014

Who would be interested in reading and seeing pictures of the concoctions I make at home to eat?

I only ask because... I live in a bachelor pad.  I don't own a stove.  I have a toaster oven, and a hot plate.  I've been living here for over a year and a half now.

I've more than made due, and made some amazing meals (I've even made cupcakes in my toaster oven that turned out better than any I had made in an oven -- on the toast setting!).  Just wondering if anyone else out there lives like me, or is low on time, or is only cooking for one and doesn't want to dirty essentially every plate in the house.
I must admit, I may have a slight obsession right now... I have begun to reacquaint myself with Hannibal: Season One.  The cast is phenomenal, and this has taken me on a deeper path.


Wednesday, January 22, 2014

Got some killer events coming up this weekend with my crew at Whiskey Warriors Live!

Tomorrow, September 23rd, we have the amazing SUPER BOB at Tailgator's in Cedar Rapids, IA.  Show will start at 8:30.  Goes until midnight!  Four great bands, absolutely free, and 21+!  Best drink specials in town you won't want to miss it.

September 24th we have SUPER BOB again at Spicoli's in Waterloo, IA!  Show is at 9pm and all ages, featuring the always amazing Dead Horse Trauma, as well as Mistaken For Halos and The Austin Taft Soundtrack!

Saturday September 25th we have another all ages SUPER BOB event at House of Bricks in Des Moines.  Doors at 5, show starts at 5:30 and will be opening with Crisis Child, followed by Switchblade Saturdays and then SUPER BOB will take the stage!

Hope to see some new faces as well as some familiar ones this weekend.  Come say hi!